This is Megan's story. As it is long (circa 4500 words) she has given us an extract to post here. I'd encourage everyone to take the time to read the full version if they can. The full version is available as a google document. Please be aware that Incurable contains mentions of suicide which some people may find triggering.
People always ask how you are but they never really want to know the answer. They just want to hear, “Oh I’m fine, thanks!” and they’re happy to believe that. They don’t want to know that you can’t move because the pain is excruciating, or that you can’t swallow your pills let alone food, that you had to change your pants twice yesterday because you didn’t make it to the toilet in time, or that you’ve been vomiting for weeks, waking up in sweats with raging migraines and cramps, or simply cannot move on some days and you never knowing which day that will be, or looking forward to a visit or an outing and having to cancel them time and again because you just aren’t well enough.
Read more here
The consultation about DLA reform ends on 14th February 2011, Valentines Day. Though traditionally a day for love, this day could adversely affect disabled people should the reforms be adjusted incorrectly. We are holding this event a month before the consultation ends to raise awareness and give anyone who wishes to the opportunity to respond.
I have just read the full document, it was worth it, Megans black sense of humour made me cry and laugh all at the same time, I agree and understand so much of it, because of my own ilnesses and problems, as Megan states, she is more than aware she's not the only one with problems, virtual hugs (real ones much too painful)and Good Luck to you Megan.
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